The New Drug.

First of all, the warrior is 7 months!!! 

And...

Just...

Look...

How..

STUNNING HE IS!!!!

 During a break 

from putting the new NG tube in,

I decided to take 

some pictures of Liam 

without it in.

So nice!!

 Sisterly love

 Such the cutiepants!

 We had the pleasure of 

a wonderful photographer

spend the day with us 

and take some pictures

of our warrior

at no charge!

 We met Angelica at the UMDF walk 

and she sent me a sweet message

asking if we'd like her to 

take some 6 month pictures 

of Liam.

YES, PLEASE!!!

 She got some really fantastic shots!

 My sweet angel

 The beautiful boy

 Napping with Daddy

 The Brave.

 I just love McKenna's artwork!

 The cutiepie on July 4th!

 McKenna drew herself

holding Liam.

Heart-melting!!

 And therapy has begun!

We stretch his legs 

and bend them 

at the knee

while flexing his feet.

Before, he would be lying down

and kicking, but

always was so tense and rigid

and kept his feet in a "pointed toes" 

position. 

After one day of stretches, 

he's loosened up soo much.

 We also stretch out his fingers

so they're not always

 in a fist position.

This helps keep his hands open

and soon will help him 

reach for toys!

 Sissy helping stretch out his fingers too!

I'm always so amazed at McKenna's

willingness to help her

little brother. 

 I just had to capture his juicy huge

lips while he was napping!

GOODNESS!!

 awwwww, snuggly babes!

 Hugs during some therapy!

Just being a silly goose. 

She walked into the living room giggling

with this spoon on her nose.

I've never been able to do this! 

 Smiling in his therapy seat 

that helps his head control.

I will dance around from left to right

or use a favorite toy,

which happens to be a blue

elephant, at the moment.

and use sounds and bounce 

the toy around from L to R

to help his eyes and head 

track the movement,

and strengthen his neck muscles.

My new favorite necklace!

It's really just so perfect right now.

I'm gathering guidance and direction

from so many.

Liam has had a rough time lately,

the seizure monster 
won't give him a break.

His neurologist is weaning him

from the medicine that was helping 

in the beginning of this wild journey,

but is no longer working.

He began a new seizure med

last night and will continue on it,

while being weaned from the other 

for the next 2 weeks.

For the last 4 days,

Liam has only wanted to be held,

and has been whining alot,

and screaming when I put

him down.

I believe it's all related to

the seizures and that

med not working.

He didn't even get to do PT

this week because of this.
I've cried tremendously
the last few days.
I cried for my angel,
I begged the Lord
to stop the seizures.
I cried 
because my warrior
can't eat,
can't hold his head up,
can't sit,
can't crawl,
like the other babies 
in my circle of 7 friends
who all gave birth just 2-3
weeks before and after 
my brave warrior arrived.
I was 
heartbroken.
That was my first breakdown
since this rollercoaster began,
4 months ago.
I indeed have been a rock,
not recently.
I collapsed and let myself feel
the loss of these few things.

But today, 

he let me put him down,

without crying,

and did some stretches

while laughing and smiling.

BREAKTHROUGH!!!
I realized those 'milestones'
are only events.
They don't define who Liam is.
His smile, 
his giggle,
his huge heart
and all the love he emits
are who he is.
He will get there,
I don't care how fast 
or how slow.
He will get there.
I will enjoy every moment
of everyday.
I will not worry.

For everything we have missed, 

we have gained something else.
So,

please continue to pray for 

our warrior.

Pray for this new med to be his

miracle drug.

Pray for our patience

and strength.

Pray for his seizures 

to

stop.

Pray for our family

and 

Liam The Brave.

The Dancin' Boy!!